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Helpful Sites for PD information

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Parkinson's Disease Foundation

www.pdf.org

Ph: (800) 457-6676

Founded in 1957, PDF is a leading national presence in Parkinson's disease research, patient education and public advocacy. They are working for the nearly one million people in the US living with Parkinson's disease by funding promising scientific research and supporting people with Parkinson’s, their families and caregivers through educational programs and support services. Through their Parkinson’s Information

Service (PINS), they offer:

  • A support service run by trained health professionals and medical staff to answer questions on any aspect of Parkinson's disease through our toll-free helpline, (800) 457-6676, and web service, “Ask the Expert.”
  • Print and audiovisual educational materials on Parkinson's disease.
  • A monthly email blast with the latest scientific and community news.

 

National Parkinson Foundation

www.parkinson.org

Ph: (800) 327-4545

NPF funds scientific research and provides information, support and education for patients, their families and healthcare professionals.

The National Parkinson Foundation makes a number of excellent resources books available free of charge. These books can be downloaded directly from there site using the attached link. We also stock a number of these books at our office and you may request copies by contacting us at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  or by calling (412) 365-2080.

  

American Parkinson's Disease Association

www.apdaparkinson.org

Ph: (800) 223-2732

Founded in 1961, the mission of the APDA is to "Ease the Burden and Find the Cure" for Parkinson's disease.

  • APDA works to achieve this through research, patient support and education.
  • Locate regional APDA Chapters and Information and Referral Centers.

 

The Michael J. Fox Foundation for Parkinson's Research

www.michaeljfox.org

Ph: (800) 708-7644

The Michael J. Fox Foundation for Parkinson's Research works to find a cure for Parkinson's disease by providing grants to help guarantee that new and innovative research avenues are thoroughly funded and explored.

 

Parkinson's Disease Foundation has compiled the most complete list of Parkinson's disease resources and organizations available.  You can order a copy for free or download manual by clicking on EDUCATIONAL MATERIALS AND ONLINE PROGRAMS.  This is a "must have" for people who are looking for information and resources over the internet.

 

Your Daughter's in Town   (Health advocacy for elders)

Parkinson's Blog:  Living With Parkinson's Disease for patients, families and caregivers.

The Sound of Tea by Frank Ferraro

This five minute film eloquently portraying a person with Parkinson's disease “on” and “off” his medicines, has been entered into the 2011 Neurology Film Festival.

 

Get Involved

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The Torch

Read the latest edition of our e-newsletter - keep up to date on all of the latest info on PD, read real life stories and get information on Support Groups and upcoming events.

Support Groups

Support Groups

Support groups share information and offer mutual support.  Group members are often the sounding board in talking out fears, concerns, or set backs and celebrating victories along the way.